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The Experience of Providing Rehabilitation for Patients with Locked-in Syndrome through the use of Communication Aids: A qualitative study

  • D Nianiou
  • K Hastie
  • L Maendl
  • A Jordan

Past research has shown that health professionals treating patients with chronic illness or communication difficulties report high levels of distress and difficulty in delivering treatment. There is limited literature about working with patients with Locked-in Syndrome (LIS) exists. This study aims to fill that gap and explore the experience of health care professionals providing rehabilitation for patients with LIS and the issues when communication is established through the use of communication aids.

Participants reported that the use of communication aids had a negative impact on the therapeutic process. However, results show that training workers to use communication aids confidently and effectively can enhance the treatment for patients with LIS and reduce the workers’ difficulties and distress.

Level of Session 
Age Group 
All Ages