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It's Never Too Late to Make it Personal: Creative communication at the end of life

Practice Report
  • Kate Burns
  • Joyce Dent
  • Angela Gilroy
  • Janet Owen
  • Ann Parr
Funding / Sponsorship: 
Kate Burns trades as CAN Communicate but participating in this project in a freelance capacity.

This paper explains our experience of applying Creative Communication to End of Life (EoL) planning for those with PMLD and/or learning disabilities and dementia.


Creative Communication training was provided. Attendees included community nurses, speech and language therapist and physiotherapist, support workers and family carers, palliative care and EoL teams and workforce development. We are producing a case study of D's end of life care journey and how Creative Communication has contributed.


People were asked to consider: where they and the service are now; the barriers and challenges; ideas and solutions; and what would be their first achievement in working towards including people with PMLD? D's case study provides an example of what happened as a result of the training. This is the start of D's journey and there is a lot to learn from him.


Creative Communication can be a 'catalyst for taking action'. "The course was inspirational and gave me lots to think about with regards to my brother. Although my brother has a 'Preferred Priorities for Care' document, this has referred mainly to his medical needs. This can now be extended and improved to give a view of the whole of his person." (D's sister).

Download Handout (zip 5.4MB)